Geometry.Net - Basic_H: Hemophilia

A Little Web Page About Me...
Personal information, photos, growing up with hemophilia and favourite links.
http://hometown.aol.com/jscott420/JScott420.html

Extractions: htmlAdWH('7008212', '120', '30'); htmlAdWH('7004796', '234', '60'); Main Create Edit Help ... FOX NEWS Growing up and living with Hemophilia... I am 26 years old, living with severe Hemophilia A. As a kid, dealing with hemophilia and/or other types of bleeding disorders is a little bit more difficult than when you get older. When I was a young kid, I had to learn what my body could handle without causing internal bleeding. I wanted to play football, I wanted to wrestle, I wanted to jump on our trampoline with my older sister and cousins.. :) just had to learn the hard way in some of those cases.. well, this is me.. just chillin gettin ready to head out for a bit.. I'm a very romantic guy, always out to please my lady.. ;) My main interests are camping, rafting, hiking, rock climbing, boating, playing the lastest video games, fixin up my car, checkin out the stars at night when its clear. I am a counselor for a youth camp for kids with bleeding disorders, helping kids have a chance to experience activities that they otherwise would not have the opportunity to fully participate in. E-mail me for additional information about camp.
Hemophilia Club
Global Network of people suffering with hemophilia their families.
http://www.geocities.com/hemophiliaclub/
Hemophilia: Nevada, Coumadin, Von Willebrands Disease & Deep Vein Thrombosis.
Information about the organization, bleeding and clotting disorders, research projects and contact details.
http://www.htcnevada.org

Extractions: The Hemophilia and Thrombosis Center of Nevada 2020 W. Palomino Lane Suite 110 Las Vegas, Nevada 89106 since April 4, 2003 The Hemophilia and Thrombosis Center of Nevada (HTCN) was founded in 1997 as the first treatment center in the state of Nevada dedicated to the diagnosis and treatment of patients with bleeding or clotting disorders. The HTCN is a non profit corporation. We support ourselves with educational grants and research grants. All team members are employed through community organizations who donate their time to the treatment center. We currently care for patients and families throughout Nevada and the neighboring underserved regions. While clinics are held in Las Vegas, we attempt to coordinate care through the primary care physician's office locally. We have an active advisory board composed only of affected and concerned persons. This board promotes the mission of the HTCN and helps to guide the activities of the treatment center staff. If you are interested in volunteering at the HTCN or helping support us, please call the center at the number below. We always need help with our newsletters published three times per year and special events. The HTCN is dedicated to improving the care of patients with bleeding or clotting disorders regardless of the ability to pay.
Welcome To Hempohilia Center Of Western New York
Offers a variety of services related to hemophilia and other hereditary blood disorders.
http://www.wnyhemophilia.com/
Hemophilia
List of all transmissible spongiform encephalopathies affecting humans.
http://www.hemophilia.ca/en/4.2.3.html

Extractions: Kuru Kuru is the first human spongiform encephalopathy recognized to be transmissible. The Fore tribe in Papua New Guinea used to practice ritual cannibalism. When a member of the tribe died, the women and children ate the person's brain. The men ate the muscle tissue. The practice had two goals - to take in the spirit of the departed ancestor and to ingest a rich source of protein, difficult to get in the area. The practice ended about 1956. Kuru affected a large number of people, especially women. The men who contracted Kuru are believed to have been exposed as children. Clearly, the brain tissue proved far more infectious than the muscle tissue. The symptoms of Kuru were uncoordinated movements, neurological weakness, and decay in brain function. However, dementia was not a symptom as it is with CJD. The incubation period can be as long as 40 years. People usually died within 1 year of the onset of symptoms.
Hemophilia
What is hemophilia? There are numerous inherited bleeding disorders.The disability. Viral Complications of hemophilia. HIV/AIDS.
http://www.hemophilianevada.org/Hemophilia/hemophilia.html

Extractions: What is Hemophilia? There are numerous inherited bleeding disorders. The most common ones are the hemophilias and von Willebrand Disease. Female carriers of the hemophilia gene may also exhibit abnormal bleeding. This occurs when their own factor VIII or IX level is below normal. Treatment is aimed at replacing the deficient clotting factor. This is done via infusions of concentrates containing the needed factor. Many patients are on a home infusion program whereby they self-infuse the clotting factor concentrate when they bleed or administer it regularly to prevent bleeding. This ensures prompt treatment, and gives them greater independence and more control over managing their disorder. The costs of treating severe hemophilia are high, sometimes $60,000 to $100,000 per year or more. Prevention, early recognition, and prompt treatment of bleeds can help keep these costs down as well as reduce disability. HIV/AIDS Prior to 1985 many hemophiliacs became infected with HIV, the virus that causes AIDS (Acquired Immune Deficiency Syndrome), through blood products contaminated with the virus. Since that time, commercially prepared blood clotting concentrates have been screened for the presence of HIV and then further treated with other means such as heating and pasteurization to make them free of the virus.
THE MERCK MANUAL, Sec. 11, Ch. 131, Hemostasis And Coagulation Disorders
Information for doctors from this online textbook.
http://www.merck.com/pubs/mmanual/section11/chapter131/131c.htm

Extractions: This Publication Is Searchable The Merck Manual of Diagnosis and Therapy Section 11. Hematology And Oncology Chapter 131. Hemostasis And Coagulation Disorders Topics [General] Hemostasis Hereditary Coagulation Disorders Acquired Coagulation Disorders Hereditary Coagulation Disorders HEMOPHILIA Common forms of hereditary bleeding disorders caused by clotting factor deficiencies of factor VIII, IX, or XI. Hemophilia A (factor VIII deficiency), which affects about 80% of hemophiliacs, and hemophilia B (factor IX deficiency) have identical clinical manifestations, screening test abnormalities, and X-linked genetic transmission. Specific factor assays are required to distinguish the two. Genetics Hemophilia may result from gene mutations: point mutations involving a single nucleotide, deletions of all or parts of the gene, and mutations affecting gene regulation. About 50% of cases of severe hemophilia A result from a major inversion of a section of the tip of the long arm of the X chromosome. Because factor VIII and factor IX genes are located on the X chromosome, hemophilia affects males almost exclusively. Daughters of hemophiliacs will be obligatory carriers, but sons will be normal. Each son of a carrier has a 50% chance of being a hemophiliac, and each daughter has a 50% chance of being a carrier. (See also Ch. 286.
WYETH: Hemophilia Information At Hemophiliavillage.com Brought To You By Wyeth G
hemophilia Village is a hemophilia resource for patients, caregivers of hemophiliapatients and health care professionals treating bleeding disorder from the
http://www.hemophiliavillage.com/
Matt Klimshuk's Home Page
Information on von Willebrand's Disease and links to von Willebrand's and hemophilia sites.
http://www.mindspring.com/~mattrk/

Extractions: "Information is Power" Providing Information on von Willebrand's Disease Go To Personal Information What Is Von Willebrand's Disease? Von Willebrand's Disease (vWD) is not a disease at all, but the most common genetic disorder in the world (classic hemophilia is more well known due to its connection with the royal families of Europe). In fact, vWD is times more common than classic hemophilia! It was discovered by a Finnish doctor in the 1920s, who named it after himself and called it a disease. Later, Dr. von Willebrand discovered in truth that the illness was linked to a missing blood factor, which assists with the clotting of blood. He named the factor after himself as well - von Willebrand's Factor (vWF). The disorder is not sex linked (autosomal), meaning that both men and women can have it, but some can be carriers only and not manifest any of the symptoms. VWD occurs when the body makes either inferior vWF or none at all. Other blood factors can be short-changed as well. Generally, vWD is divided into three types: Type I (mild), Type II (Medium) and Type III (severe). The lower the type, the less the symptoms will occur and the less strenuous they will be. What Are the Symptoms?
Hemophilia Association
The Mission of the hemophilia Association is to enhance the quality of life forthose in Arizona with hemophilia, hemophiliarelated HIV/AIDS and other
http://www.hemophiliaz.org/
FACTOR FOUNDATION HOME
Locating financial support for those dealing with hemophilia and related bleeding disorders. Membership.
http://www.factorfoundation.org/
Copernicus Therapeutics, Inc.
Developing human gene therapy products for cystic fibrosis and hemophilia B and DNA vaccinations. The company creates proprietary PLASmin Complexes which are efficient nonviral vectors and REPLIsome vectors which allow replication of non-viral vectors.
http://www.cgsys.com/
WYETH: Hemophilia Information At Hemophiliavillage.com Brought To You By Wyeth G
Provides information on the signs, symptoms, causes and treatments of hemophilia A and B.Category Health Conditions and Diseases Blood Disorders hemophiliaAn information resource on the bleeding disorder hemophilia and its causes, treatmentand management. Also includes information on hemophiliaVillage.
http://www.hemophilia-village.net/
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http://hemophilia.spb.ru/
AHF - What Is Hemophilia?
Disclaimer Privacy Policy. WHAT IS hemophilia? hemophilia is a disorder causedby an error in a persons genetic code. hemophilia is a lifelong disorder.
http://www.ahfinfo.com/ahfinfo/whatishemophilia.html

Extractions: WHAT IS HEMOPHILIA? This special genetic code, passed to an unborn child, is supposed to signal a series of steps that help control bleeding by clotting. The steps needed to form a clot depend upon a series of proteins called factors. This error in genetic code means that some of the factors are missing or that they are not working correctly in a person with hemophilia. This causes people with hemophilia to bleed longer but not faster. Surface bleeds, on the outside of the body, are fairly easy to stop, even for people with hemophilia. Internal bleeding, such as bleeding into joints or muscles, can mean that it is only possible for a clot to form after the person has taken medication called clotting factor. More than 15,000 people have hemophilia A or hemophilia B in the United States. There are other bleeding disorders where one or more of the clotting factors is missing. People with hemophilia A are missing factor VIII and those with hemophilia B are missing factor IX, others may be missing factors I, II, VII, etc. There are also other bleeding disorders. The most common of which is von Willebrand disease, and many more people have von Willebrand disease than have hemophilia. Individuals with bleeding disorders can be missing a little, a lot, or almost all of that particular factor needed to form clots and stop bleeding. These are called mild, moderate, and severe levels of disorder. The level of severity will predict how often a person will develop a bleed, how difficult it will be for them to form a clot, and how much clotting medication they will need in order to form a clot.
Medical And Hemophilia References
Personal page from Rick and Linda Thomas.
http://www.geocities.com/HotSprings/3160/medpage.html
Hemophilia, Clotting Factor, Infusion, Hemophilia Care, Von Willebrand Disease,
Providing next-day hospital and home delivery of several blood products.Category Business Healthcare Products and Services Blood Products Care, von Willebrand disease. The hemophilia Disease Management Company31 Moody Road PO Box 985 Enfield, CT 06083 1-800-243-4621.
http://www.ahfinfo.com/
Hemophilia Resources Of America (HRA): About Hemophilia Von Willebrand Disease F
Information from hemophilia Resources of America.
http://www.hrahemo.com/abouthemo/vonwillebrand.html

Extractions: Von Willebrand (VWD) is a genetic disorder which can be inherited from either parent. It affects both males and females. VWD is the most common bleeding disorder. It is estimated to occur in approximately one in 100 people and affects all ethnic groups. Over 3,000,000 people in the U.S. are affected. Most people who have this disorder do not know that they have it.
Corautus Genetics Inc : HOME : Bringing Gene Therapy To Life
A biopharmaceutical company developing innovative gene therapy products, for the treatment of serious medical disorders, focusing on hemophilia, cancer and HIV/AIDS.
http://www.genstar-rx.com/
Welcome To Hemophilia Health Services
Home About Us FactorCare Why HHS Bleeding Disorders Bloodstone Magazine Just For Kids Terms ©Copyright 2002 hemophilia Health Services, Inc.
http://www.accredohealth.net/hhs/

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